Local Autism Support Services

When you or a family member is autistic, navigating the world of support services can feel like a complex journey. It is a journey of finding the right information, the right people, and the right resources to help you thrive. But where do you start? This guide provides information on finding local autism support services across England, covering both statutory services provided by the government and the invaluable help offered by the voluntary sector.

Statutory Services: Your First Port of Call

Statutory services are those delivered by official bodies like the NHS and your local council. They are legally required to provide care and support and are often the first step in getting formal help.

• The Diagnostic Pathway

  For many, the journey begins with seeking a formal diagnosis. The first step is usually to talk to a GP. For children under five, a health visitor is also a key contact, while for school-aged children, you can speak to the school's Special Educational Needs Coordinator (SENCO). You may then be referred to a team of specialists for an autism assessment. This team may include professionals such as a paediatrician, a speech and language therapist (SaLT), and a psychologist. A formal diagnosis can be beneficial as it enables access to the right care and support.

• Support in Education (SEN)

  Children and young people with Special Educational Needs (SEN) or disabilities are entitled to support in their education. The Children and Families Act 2014 and the SEND Code of Practice set out the duties for local authorities and schools. This support is often coordinated through an Education, Health and Care (EHC) plan, which identifies a child's needs and sets out the provision required to meet them, supporting them from birth to the age of 25.

• Adult Social Care and Carer's Assessments

  Local authorities have a duty under the Care Act 2014 to assess the care and support needs of adults. This assessment helps to determine what support a person might need to live as independently as possible. It is important to remember that family members who provide care are also entitled to support. A Carer's Assessment can be requested from your local council's adult social services department to see what might make your life easier, such as help to take a break (respite care) or advice on benefits.

• Child and Adolescent Mental Health Services (CAMHS)

  Mental health support for young people is often provided through CAMHS. These teams can provide assessment and treatment for autistic children and young people who may also be experiencing mental health conditions such as anxiety or depression, which are common co-occurring conditions.

The Voluntary Sector: A Community of Support

Beyond official services, a rich network of charities, community groups, and peer networks offers a wealth of information, advice, and connection.

• National Charities

  Organisations like the National Autistic Society (NAS), Ambitious about Autism, and Autistica are leading charities in the UK. They offer comprehensive websites with information, advice helplines, and campaign for a more inclusive society for autistic people.

• Parent and Peer Support Groups

  Can anyone truly understand what it is like to be autistic, or to care for an autistic child? Connecting with others who have lived experience can be incredibly powerful. Support groups provide a safe space to share experiences, ask for advice, and reduce the feelings of isolation that many families and autistic people can face.

• Autistic-Led Organisations

  Many autistic adults prefer identity-first language ("autistic person") because being autistic is seen as an integral part of who they are. Organisations that are run by and for autistic people embody this principle. They provide support and advocacy from a place of authentic, lived experience, which can be incredibly empowering.

Navigating the System

Accessing services is not always straightforward, and sometimes you may need help to have your voice heard.

• The Role of Advocacy

  An advocate is someone who can help you express your needs and defend your rights. This is especially important during assessments or when planning care. Under the Care Act 2014, your local authority must ensure you have access to an independent advocate if you have substantial difficulty being involved in the process and do not have an appropriate person to support you.

• Making Services Work for You

  Do not be afraid to ask for reasonable adjustments to overcome barriers. This could mean requesting a quieter waiting area for an appointment, asking for information to be provided in a visual or written format, or having a carer or support worker accompany you.

Building Your Support Network

Finding the right support is a process that involves connecting with different services and people to create a network that works for you. From the formal assessments provided by statutory services to the community connection found in a local support group, each piece plays a vital role.

By being proactive and knowing your rights, you can access the help you need. This journey ensures that autistic people and their families are not just supported, but are understood, respected, and empowered to live fulfilling lives.