Autism interventions beyond paediatrics remains a challenge

Treating adults with autism requires a new medical blueprint
(Category: Daily News About Autism and Neurodiversity)
A report from the University of Maryland offers a blueprint for treating adults with autism and neurodevelopmental disorders (NDDs) who typically lose access to specialised care after leaving paediatric services. The Clinical Center for Adults with Neurodevelopmental Disorders (CCAND) utilises a state-funded, multidisciplinary model involving neurologists, genetic counsellors, and social workers to ensure continuity of support. Over five years, the centre evaluated 305 adults, revealing significant unmet medical needs. Data showed that 62 per cent of patients had epilepsy, with nine people receiving a seizure diagnosis for the first time. Furthermore, 71 per cent had never undergone genetic testing; of those who did, nearly 20 per cent received a new diagnosis, enabling better medical management. The team also addressed common behavioural and mental health challenges often linked to conditions like Tuberous Sclerosis Complex (TSC). The authors argue this model dramatically improves health outcomes. However, professional billing alone cannot cover the costs of essential staff. Consequently, the programme relies on modest state investment, providing a vital template for policymakers to ensure people are not left behind as they age.